As you probably know, Maddie Brown gave birth to her second child back in August.
She and her husband welcomed a baby girl they named Evangalynn — though they’ve been calling her Evie for short.
Maddie has shared a ton of pictures of baby Evie in the two months she’s been around. Pictures of her, pictures of her with big brother Axel, pictures of the whole family …
But one thing that she hasn’t shared is a photo of her baby’s whole body.
And to be clear, that’s perfectly fine and not strange at all.
She’s still a newborn, so she’s been wrapped in blankets a bunch, and of course the fans will want to see her face most of all — and honestly, she doesn’t owe us any pictures whatsoever.
But this morning, Maddie revealed that there’s actually a reason she’s only shared certain photos of her daughter.
And with her explanation, she shared a brand new darling photo.
She started off her explanation by writing that "This is one of the hardest things that Caleb and I have gone through and the decision to share almost as difficult, but after a lot of consideration, we realized that it’s the best thing for our daughter and there is a chance it may help other parents who may also be struggling."
"Our beautiful baby daughter Evie has been diagnosed with FATCO syndrome (basically the abbreviation for lots of intense Latin words)," she continued.
"It’s a rare medical syndrome where bones in extremities do not fully develop."
A quick search shows just how rare it is — it only happens somewhere from five to 20 times for every million births.
Maddie admitted that "It wasn’t a complete surprise" that Evie had this condition, and that "we were aware of some abnormalities before birth."
"We knew something was wrong when we went in for a routine anatomy ultrasound at 26 weeks and what should have taken 45 minutes, ended up lasting a nerve-wracking two hours."
"It was then that the doctor told us that they couldn’t find all ten fingers and diagnosed the baby with oligodactyly (fewer than ten fingers)," she wrote.
"Although this was better than expected, it was still heartbreaking news."
But when Maddie gave birth to Evie, they realized that the issue was bigger than just her fingers.
"She was missing three fingers," she revealed, "a toe and her fibula. She also had a bowed tibia, a shortened forearm and some fusing in her fingers."
If you’re not super clear on the anatomy terms, the fibula is that thinner bone that runs parallel to the tibia, which is the shin bone — you can see what Maddie’s talking about in the photo.
As for why she and Caleb didn’t share the news right away (again, not that she owes it to anyone), she said that "We were hesitant to share Evie’s condition publicly for fear that our infant daughter would become the target of mean jokes and cyberbullying."
So that’s completely heartbreaking, right, to think that anyone would be so heartless that they’d make fun of anyone for something like this, especially a tiny little baby?
"That said," she added, "we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes."
She said that doctors aren’t sure what exactly causes the condition, but that thankfully "she is healthy in every other way aside from the missing bones."
"As a family," she concluded, "we have decided to be open as we walk through this journey."
"We want Evie to always feel pride in who she is, and all that God gave her!"
So far, Maddie’s post isn’t receiving any of those mean jokes she was worried about — quite the opposite!
She’s getting nothing but love and support, which is really just so nice to see.
It’s clear that precious baby Evie lucked out when it comes to parents, huh?